Below we have put together a list of websites and resources that may help you if you're diagnosed with a cancer-related gene mutation or going through a mastectomy. They sure helped us! This list includes everything from books to Instagram accounts that helped empower and inform us to make the right decisions for us.
If you have any other resources, links, or accounts for us to add please leave a comment below or shoot us an email or DM us on Instagram!
xxx Ivy & Eve
BRCA+ RESOURCES TO LEARN MORE:
https://www.nsgc.org/
https://www.cancer.org/
https://www.facingourrisk.org/
https://www.masseycancercenter.org/patients-and-families/patient-resources-and-support-services/inherited-cancers/the-genetics-of-ovarian-cancer/hereditary-breast-and-ovarian-cancer-syndrome
https://www.dol.gov/sites/dolgov/files/ebsa/about-ebsa/our-activities/resource-center/publications/your-rights-after-a-mastectomy.pdf
https://brca.ucsf.edu/patients/resources
APPS:
FACEBOOK GROUPS:
YOUTUBE ACCOUNTS:
Paige Previvor
Samatha Nicole
Finding inner Pearce
Becky Excell
Teaching in Pearls
Screw You Cancer - by Glamour Magazine
INSTAGRAM ACCOUNTS:
@the_breasties
@dani_trops
@dianagregoriades
@paige_previvor
@findinginnerpearce
@lauren_syndi
@mycancerchic
@ohheybreastie
@brcababeboston
@kristinacoccoluto
@theebooblessbabe
@forthebreastofus
@gabbin_thru_brca2
BOOKS:
Dangerous Boobies by Caitlin Brodnick
Probably Someday Cancer by Kim Horner
Resurrection Lily: The BRCA Gene, Hereditary Cancer & Lifesaving Whispers from the Grandmother I Never Knew: A Memoir by Amy Byer Shainman
October Never Ends 25 Years Young With Breast Cancer by Brittania Bryant
Ripped Genes: A Practical Guide to Understanding & Navigating Hereditary Breast Cancer Risk by Jennifer Ervin
The Complete Guide to Breast Reconstruction by Kathy Steligo
PODCASTS:
BLOGS:
My Cancer Chic - https://www.mycancerchic.com/
BRCA Support - https://brcasupport.com/
Lauren Syndi - https://laurensyndi.com/category/health/brac1/
North Carolina Charm - https://www.northcarolinacharm.com/search/label/double-mastectomy/
Jennifer Garam - https://www.jennifergaram.com/cancer-blog/2021/10/25/what-you-need-for-mastectomy
Liz Wessel - https://www.lizwessel.com/prophylactic-mastectomy-blog
The Road Les Traveled - https://theroadlestraveled.com/13-things-to-know-before-undergoing-double-mastectomy/
FITNESS:
Always consult with your doctor before doing any workouts to make sure you are healed enough to do these safely!!
Pre- and Post Surgery workout - https://cancer.ucsf.edu/sites/cancer.ucsf.edu/files/bcc/treatment/exercises_mastectomy.pdf
Post-op 12wk free - https://watch.thelimitfit.com/12-week-post-mastectomy-breast-cancer-series
Post Mastectomy Yoga - https://www.youtube.com/playlist?list=PLMTZH2lG-os2SAgjVW5zSbTgCppG_R4K1
Breathing exercises - https://www.youtube.com/watch?v=SM9DnUhu3Lw
COMPANIES THAT CAN PROVIDE SOME ASSISTANCE, COVERED BY INSURANCE, OR DISCOUNTS:
https://www.anaono.com/pages/insurance-coverage - Insurance coverage post-surgery bras.
https://www.pink-perfect.com - Insurance covered ready-made and custom prosthetic nipples.
https://www.brcastrong.org - You can request a care package that includes things like a post-surgery bra, robe with drain pockets, shirt with drain pockets, and other goodies.
https://www.pocketsofhope.com/request-a-hoodie.html You can request a cozy zip hoodie with hand sewn drain pockets in fun fabrics.
https://handful.com/pages/breast-friend-forever - 30% off bras.
RVA LOCAL RESOURCES
Pink Chair Project - Provides electric recliner chairs for recovery from your mastectomy.
Pink Ribbon Boutique - A beautiful lingerie boutique specializing in bras for every step of your breast care journey. They have a huge selection of pretty wireless bras, cute clothes, and accessories, along with breast and nipple prostheses. They will work with insurance to get your purchases covered.
Virginia Breast Cancer Foundation - Provides many resources along with an informational care package for anyone going through a mastectomy.
VCU High-Risk Breast Cancer Program - Specialized care team for people with an elevated risk of developing breast cancer through their family history or genetics.
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